Retrieval of individual patient data depended on study characteristics: a randomized controlled trial
Veroniki AA, Ashoor HM, Le SPC, Rios P, Stewart LA, Clarke M, Mavridis D,Straus SE, Tricco AC. Retrieval of individual patient data depended on study characteristics: a randomized controlled trial. J Clin Epidemiol. 2019 Sep;113:176-188. doi:10.1016/j.jclinepi.2019.05.031.
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Funder: Canadian Institutes of Health Research (CIHR)
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[ssba-buttons] [/sidebar] [sidebar-content]- Our findings can inform individuals of the barriers and facilitators in obtaining study individual patient data
- Sharing individual patient data has legal, ethical, and logistical constraints, which may deter researchers from embarking on projects related to individual patient data synthesis
- Significant barriers were encountered in an attempt to obtain individual patient data, which included the following: confusion of data ownership, correct identification of trial studies, and time to obtain access
- The likelihood of obtaining individual patient data may be associated with study-specific characteristics, such as funding type, study size, risk of bias, and treatment effect
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Date : 03 Apr 2020